A supportive space for people & families affected by Cystic Fibrosis. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. A double-lung transplant, when successful, can add years to a patients life. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. Read about our approach to external linking. real family is great. 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She joked that the squats she was doing, upon doctor's orders, would help get her more than lungs. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. She played hide-and-seek with nurses and left explosions of glitter in her wake. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. She has gone on to become an advocate for others suffering from the disease she has had since birth. There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. Is there someone you miss whose memory should be honored? Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. Thus, at the age of 13, Wineland founded her non-profit organization, Claires Place Foundation. The organization aimed at providing financial and emotional assistance to patients of cystic fibrosis, and their families. But not long after the successful surgery, hope turned to fear. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Claire was an activist, author, TEDx Speaker, social media. At the time of birth, she had the life expectancy of only 5 years old. Some people worried that shed waited too long and wouldnt be given the chance at continued life. Shed also get a butt. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. Wineland was moved by the communitys support when she was in coma. Jace Prescott died at age 31, too young. She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Eldridge R. Johnson Cause of Death, Age of Death, and Other Facts! Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. Im grateful for the chance to keep being a person. Im just really overwhelmingly grateful for all of this. Youll be missed deeply. Claires Place Foundation is planning to continue extending support to patients. Her organs were made available for transplant. The medical team that tended to her became family. 2023 BBC. "Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughter's aura and her ability to lift up those around her.In 2017, Yeager recalled a conversation with Claire about death. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. Updated Living a life we can be proud of is something we can control." - Claire Wineland. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Submit an Obituary. Revealed on her left ankle was a tattoo: the thumbs-up Dont Panic logo from The Hitchhikers Guide to the Galaxy.. What happened in the Ukraine helicopter crash? She never emerged from her medically induced coma. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. 2023 Cable News Network. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Im just really overwhelmingly grateful for all of this. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. A quarter of Claires life was spent in the hospital. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. To face each day, Claire Wineland undergoes hours of breathing treatments. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. Sympathy . What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She was an avid dog lover and had a dog named- Daisy.. Her foundation said she had died peacefully, surrounded by family. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. Given the severity of the stroke and Claire's advance directive, it became clear that it was time to let her go. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. [4], Wineland was born with cystic fibrosis in Austin, Texas. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Who is Claire Wineland? "Death is Inevitable. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. There is no passionate rant to be had here I am just happy and thought I would let you all know. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Her father credits Claire with teaching him to not be afraid of what hasnt happened yet and to learn to love what is.. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. According to doctors, she had a survival chance of 1%. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. She listened to the risks and the long list of side effects and emerged unfazed. She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. Go enjoy it, cause there are people fighting like hell for it.. Obituaries Section. She had a popular YouTube channel, gave . She was placed in a medically-induced coma, for 16 days. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. Really. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Dedicated daily to memorializing notable personalities. Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. Im grateful for all the people who donated to help me get through transplant. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). I'm willing to deal with anything.". "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. She played hide-and-seek with nurses and left explosions of glitter in her wake. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. "None of it spooked me," Claire said afterward. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. appreciated. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. View this post on Instagram Wineland hosted many videos for the channel. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Claire Wineland died at age 21, too young. Claire Wineland was born on April 10, 1997, in Austin, Texas. She has a younger sister named Ellie. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. She expected to die young. Your effort and contribution in providing this feedback is much VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. In August 2017, after taking a break from YouTube videos for a year, Claire Wineland returned with a new channel. The cause of death was a massive. Did you encounter any technical issues? [11], On August 26, 2018, Wineland underwent a double lung transplant. Claire Wineland was a person who did not like to be pitied. It hurts everything inside of me to make this video, she said into the camera. Snap Greene is the alter-ego of 13 year old Claire Wineland. Her organs were made available for transplant. She performed with Philips Breathless Choir, as a solo singer. We invite you to share condolences for Claire Wineland . Shed worked hard to get there, was focused on her self-care and getting stronger. I want to see what happens in life. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. It was released on the first anniversary of Wineland's death. She founded her own company at 13. On Monday afternoon, her mother received word that Claire had already made a difference. She was also a speaker for the motivational TEDx Talks.. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. Living a life we can be proud of is something we can control. I dont want to actually die. I'm grateful for the chance to keep being a person," she said. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. 2:33 PM EDT, Tue September 4, 2018. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. This time, she was raw and allowed herself to cry. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. A Warner Bros. I mean that seriously," she said with her signature smile and laugh, her eyes not yet dry. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Its a GO!! I would like to acknowledge Claire Wineland who passed away last night. @larissaperoux We some cheese balls just cheesing it up. Really. Wineland was a singer, artist, and composer. The Plain Dealer Homepage. Go enjoy your life. She passed away peacefully, with her parents by her side. YouTube star Claire Wineland has died a week after having a lung transplant. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Cystic fibrosis is a genetic condition with no known cure. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. Im not an innocent and Im not a child. She had a popular YouTube channel, gave So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Search by Name. We invite you to share condolences for Claire Wineland in our Guest Book. I didn't expect to have a chance. She revealed that The Clairity Project was not under her control. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Notable quote: I do these talks to make a point. She decorated her hospital room, and posted inspirational messages on its walls. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Why a terminally ill young woman has changed her mind about living. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. "It's a GO!!!" As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. . She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. 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Snap Greene is the alter-ego of 13 year old Claire Wineland became renowned for her posts about illness and on...
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